Dedicated Advocates for Esophageal Atresia Awareness and Support
Christy's Courage is a nonprofit organization committed to essential support to families affected by Esophageal Atresia (EA) and Tracheoesophageal Fistula (TEF). These rare and complex birth defects impact the connection between the esophagus, lungs, and stomach. Every year in the United States, between 3,000 and 5,000 babies are born with EA/TEF, and this number rises to one in 10,000 globally. Christy's Courage is a beacon of hope for these families, offering services tailored to their unique needs.
Understanding Esophageal Atresia
Esophageal Atresia is a serious condition where a baby is born with an abnormal or nonexistent connection between the esophagus, lungs, and stomach. This condition often requires immediate medical attention after birth and may involve multiple surgeries throughout the child's life. Most cases of EA/TEF are not detected before birth, but certain signs can alert healthcare professionals during prenatal exams. These signs include:
- Small stomach, no stomach, or no stomach bubble
- High levels of amniotic fluid
- Connection to vessel cord irregularities
Associated Conditions with EA/TEF
Children born with Esophageal Atresia often face additional medical challenges. Alongside EA/TEF, these babies can have other birth defects, such as:
- Heart defects
- Digestive tract disorders
- Kidney and urinary tract conditions
- Muscular or skeletal issues
- VACTERL Syndrome
- Trisomy 13, Trisomy 18, Trisomy 21
Resources
Through our dedicated efforts, Christy's Courage is significantly impacting the lives of children and families facing Esophageal Atresia. If you have questions, don't hesitate to get in touch with us today.