Serving People Globally
A Nonprofit Organization Supporting EA/TEF Families
When a child is born with Esophageal Atresia (EA), a rare and complex congenital disability, the journey for the child and their family can be incredibly challenging. The road to managing this condition often involves navigating a maze of medical procedures, equipment needs, and emotional support. Without proper guidance and resources, families can feel overwhelmed, isolated, and unsure of where to seek help.
Leading the Way for EA/TEF Patients
Christy's Courage, a nonprofit organization based in Charlotte, North Carolina, is dedicated to filling this gap by offering crucial support to children, individuals, and families affected by Esophageal Atresia and Tracheoesophageal Fistula (EA/TEF). As the only nonprofit organization in the United States focused exclusively on supporting EA/TEF patients, Christy's Courage provides a lifeline to those navigating the complexities of this condition.
Comprehensive Support and Resources
We offer a wide range of services tailored to the unique needs of EA/TEF patients and their families. These services include:
- Specialized Products: We provide essential items such as elevated sleeping and resting products that cater to the specific needs of EA/TEF patients, helping to alleviate discomfort and promote better health outcomes.
- Support Groups: Understanding that the journey can be isolating, we offer support groups where families can connect, share experiences, and gain strength from a community of others who understand their challenges.
- Medical Education: We equip families with up-to-date medical education, ensuring they can make informed decisions about their care.
- Pharmaceutical & Medical Equipment: Christy's Courage supplies critical pharmaceutical and medical equipment, making it easier for families to access the tools needed to manage EA/TEF effectively.
- Holistic Treatment Resources: Besides conventional treatments, we provide resources on holistic approaches, offering families alternative options to support overall well-being.
Our Mission
We aim to improve the quality of life for children, adults, and their families with EA/TEF by offering support groups, medical education, pharmaceutical and medical equipment, and holistic treatment resources.
Boston Children's Hospital Family Day 2024
BCH hosted a family day in August 2024. Over 300 families were in attendance for corn hole, a picnic, coloring, bubbles and many other fun activies. There were guest speakers from Germany, Anke Widemann whose son has EA, Michaela Blom EA researcher from Sweden, Graham Slater 70 year old EA survivor & Christy Cook 60 year old EA survivor from the USA. Anke, Michaela & Graham are members of E.A.T. the global non-profit for EA, https://www.we-are.eat.org. BCH is looking forward to making Family Day a yearly event.
With every collaborative step forward, we embrace the courage, confront the condition, and cherish the victories of those we serve. Christy's Courage is more than a nonprofit organization; it's a sanctuary for hope, healing, and the heralding of new possibilities. If you have questions, don't hesitate to contact us today.
With every collaborative step forward, we embrace the courage, confront the condition, and cherish the victories of those we serve. Christy's Courage is more than a nonprofit organization; it's a sanctuary for hope, healing, and the heralding of new possibilities. If you have questions, don't hesitate to contact us today.